Research Fellow / Data Manager

Job description

Job responsibilities

JOB DESCRIPTION

Job Title: Research Fellow / Data Manager

Team: Hospice Care Team

Group: Care

Reports to: Nurse Consultant Paediatric Palliative Care

Hours: 37.5 hours (Split between Specialist PalliAtive CarE (SPACE) team and Practice Education team) 3 days within the hospice, 2 days remote working

Level: Band 7 £50,921.91 - £55,184.02 (geographical allowance included)

Location: Christophers, Guildford

Introduction to Shooting Star Childrens Hospices

Shooting Star Childrens Hospices

Shooting Star Childrens Hospices provides specialist care and support to families who have a baby, child or young person with a life-limiting condition, or who have been bereaved. Rated Outstanding by the Care Quality Commission, we support families across Surrey, north-west London and south-west London from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care.

Our specialist care and support is free of charge to families and available 24 hours a day, 365 days a year. It includes specialist nursing in the community, symptom management, overnight respite stays, end-of-life care, specialist bereavement care and a comprehensive range of therapies, groups and clinics for the whole family.

At the heart of what we do are our dedicated staff; their exceptional commitment and professionalism means every family has the opportunity to make every moment count.

It costs £10 million a year to run Shooting Star Childrens Hospices. Just 30% of our funding comes from the government, so we rely on our supporters generosity to keep the service running. We employ 175 members of staff, including 98 nursing and medical staff, and support around 700 families.

The Hospice Care Team

An exciting opportunity has arisen at the hospice for a research fellow to work with the specialist palliative care team and wider hospice teams at Shooting Star Childrens Hospices (SSCH). Research is at the core of the services that we offer, and the successful applicant will be required to work with the Research Governance group to continue to develop our research programme, strategy and with the clinical teams service development and data management projects. This role is able to be offered as a hybrid working pattern with 3 days in the hospice and 2 days remote working.

Scope of the Role

Be a professional role model and research champion for the organisation.

Lead and coordinate research ensuring a research culture within the hospice.

Take responsibility and accountability for research studies.

Provide specialist advice to support and facilitate high quality research in collaboration with the research governance group and multi professional team.

Facilitate the development of staff research knowledge and skills.

Provide an innovative and progressive attitude to the continual improvement of Child/Young Person (CYP) care through research and evidence-based practice.

Take responsibility for ensuring that any personal data used for research purposes is handled in line with the Data protection Act and its principles.

Work to deliver the hospice wide research strategy.

Key Working relationships

Director of Care

Nurse Consultant

Medical Director / Consultant in Paediatric Palliative Medicine / Hospice GPs

Head of Hospice Services

Head of Family Support Team

Practice Education and Quality Team

Research Governance Group

Trustees for Care

Hospice care teams organisation wide

Safeguarding adults and children Team

Multidisciplinary Teams

Children, Young People, their Families

Research colleagues from external settings

Main duties and responsibilities

Research:

To be responsible for the day-to-day coordination and administration of research projects

To participate in the design and preparation of research studies/trials, research ethic committee submissions, patient information sheets and other documentation ensuring that these are reviewed and updated as required.

To carry out and assist in data collection (including qualitative interviewing techniques) for research projects with CYP and/or their families.

To design and maintain databases (e.g., using MACRO) and to use specialist statistical packages as appropriate (e.g., SPSS) for the analysis of research data in liaison and consultation with the research group.

To prepare reports and presentations for review meetings and progress of research projects.

To comply with research study protocols, standard operational procedures and Hospice / Trust policies related to data security, confidentiality and health and safety.

Be involved with the financial processes associated with coordinating research studies and grant applications.

To present research findings in the form of published papers, reports, presentations, or summaries internally, nationally and internationally.

Act as a resource to staff and contribute to their professional and educational development Act as expert resource for staff and researchers preparing submissions for regulatory approval.

To support projects for the specialist service (3 days) and the wider hospice (2 days).

To support the development and compliance of research governance infrastructure in the organisation.

To ensure the hospice can be a collaborative partner in national research projects and engage meaningfully with the national paediatric palliative care research agenda.

Report any poor research processes that compromise patient safety and study protocols.

To ensure that all research is documented, and that all relevant documentation is completed accurately and within agreed timescales using Shooting Star Childrens Hospices approved documentation in line with NMC, CQC and Shooting Star Childrens Hospice standards.

To lead and take decisions on requests from externals teams for Shooting Star to participate within their research in consultation with the Research Governance Group.

Service development:

To participate in the parent involvement/research advisory group.

To undertake presentations and teaching with multi-disciplinary staff to a variety of audiences as required and lead journal club.

To assist in the design and implementation of service development projects as pertinent to the role, following policies

To undertake project management, including audit and service evaluation, with colleagues within the care teams to help develop and improve services to patients and their families.

To undertake evidence-based literature searches and reviews to assist the Care teams in implementing evidence-based practice.

To be active in the research strategy, plan and lead stakeholder events.

Data management support for SPACE team:

To collect, analyse and present data for SPACE team (specialist paediatric palliative care) which is based at SSCH.

To use computer-based applications e.g. excel, PowerPoint for entry, analysis and presentation of data.

To create quarterly reports of service data and present to relevant teams for service monitoring and development and to the SSCH clinical governance group

Other:

To maintain up to date knowledge of legislation, national and local policies, and issues in relation to the role.

Taking part in regular appraisal and maintaining an active engagement with current developments in the field of paediatric palliative care and related disciplines.

To undertake relevant training on advanced communication skills and data collection methods as required.

To plan and organise own workload, including research, group, and individual work.

Contribute to monitoring of consent procedures.

Participate in local, regional, and national forums and networks related to clinical research and the nurses role.

Ensure that processes and procedures for ensuring participant confidentiality are developed and adhered to in line with the Data Protection Act

Act as an ambassador for Shooting Star Childrens Hospices

Participate in events or publications that promote SSCH and childrens hospice/palliative care.

Education:

To foster an environment conducive to learning, enquiry, and research

Act as a resource to staff, contributing to the professional and educational development their research knowledge and skills.

Maintain own professional development and mandatory training.

Professional:

To maintain confidentiality surrounding the child / young person and their family at all times

To undertake further training and academic qualification as relevant to the role and service requirements

Person Specification

Education/Qualifications

Educated to postgraduate MSc - Essential

Experience

Experience of working with children and young people. - Desirable

Experience of working and interacting with research participants. -Desirable

Up to date Good Clinical Practice training. -Desirable

Experience of carrying out research in the NHS. -Desirable

Experience of working in paediatric and/or palliative care research -Desirable

Experience of disseminating research findings. -Essential

Skills Abilities/knowledge

Excellent administrative and organisational skills with the ability to meet deadlines. - Essential

Excellent IT skills including excel and power point - Essential.

Excellent interpersonal and communication skills. -Essential

Excellent time management and problem-solving skills. - Essential

Ability to work with data sets. -Essential

Ability to maintain adherence to written protocols and procedures. -Essential

Evidence of teaching and presentation skills. - Essential

Ability to manage projects and demonstrate leadership -Essential

Write research protocols and submit grant applications. -Desirable

Other Requirements

Flexibility to meet the needs of the service - Essential

Able to work across hospital and community settings to meet the needs of the role. - Essential

Person Specification

Knowledge and Skills

• Excellent administrative and organisational skills with the ability to meet deadlines.
• Excellent IT skills including excel and power point.
• Excellent interpersonal and communication skills.
• Excellent time management and problem-solving skills.
• Ability to work with data sets.
• Ability to maintain adherence to written protocols and procedures.
• Evidence of teaching and presentation skills.
• Ability to manage projects and demonstrate leadership

• Write research protocols and submit grant applications.

Qualifications

• Educated to postgraduate MSc

Experience

• Experience of disseminating research findings.

• Experience of working with children and young people.
• Experience of working and interacting with research participants.
• Up to date Good Clinical Practice training.
• Experience of carrying out research in the NHS.
• Experience of working in paediatric and/or palliative care research

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Employer details

Employer name

Shooting Star Children’s Hospices

Address

Old Portsmouth Road

Artington

Guildford

GU3 1LP

https://www.shootingstar.org.uk/